Updated on August 21, 2021
Consider signing up to participate in research. Think of all the families before you who participated in research, so your child could have quality therapy and programs.
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Project Name: Teleconsultation for Families During COVID-19 (added 10/18/20)
Dates: October 2020 - October 2021
This program provides consultation services for families, free of cost, to address concerns with children and adolescent’s (social, emotional and behavioral concerns during the COVID-19 pandemic. Parents/guardians of children ages 3 to 26 years (if still enrolled in school) are eligible to participate. All consultation sessions are provided remotely, via Zoom. There is no special technology or equipment needed to participate. Zoom can be accessed from any smart phone, tablet, or computer with an internet connection. We are researching this program, but parents can elect to not participate in the research portion of the project and just receive teleconsultation.)
Risks and Benefits (to families or scientific community):
There are no risks to parents/guardians other than potential discomfort in discussing child concerns. Potential benefits to families include receiving support for social, emotional and behavioral concerns during the ongoing pandemic. Benefits to the scientific community include gaining knowledge of the feasibility of teleconsultation services to support families when access to in-person services are limited or not available.
Name of PI, researchers, and administrative contacts (with credentials):_PI Dr. Kristin Rispoli, PhD in School Psychology, Licensed Psychologist and Nationally Certified School Psychologist. Research team also includes Emma Nathanson, MA and doctoral candidate in School Psychology, Mackenzie Norman, MA School Psychology, Sydney Nelson, LMSW, Nicole Mathes, MS and doctoral candidate in School Psychology and Allura Malcolm, MS and doctoral candidate in School Psychology.
IRB or Ethics Review Approval: IRB #STUDY00004519, approved by Michigan State University.
Cost or honorarium: No costs, no honorarium. Results of project will be provided to participants when it is completed.
Project Name: Lingo Lab
Dates: May 2019 - December 2021 * Research is currently suspended due to the COVID-19 (updated 7/1/2020)
We are currently recruiting children with autism from 2 through 5 to take part in a study about word learning and attention in children on the spectrum. The goal is to better understand how to support the development of language and communication in these children. Children will completed play-based developmental assessments and 5-minute eye-tracking tasks (“movies”). Parents will complete written questionnaires.
Risks and Benefits (to families or scientific community):
Potential risks: Because families provide personal identifying information, there is the possibility of a breach of confidentiality. However, we do everything possible to ensure that no breach of confidentiality occurs.
Potential benefits: Families of children with autism will be offered a written report of the findings from the evaluation, including information about their child’s language, cognitive, and social communication skills.
PI/Credentials: Courtney E. Venker, Ph.D., CCC-SLP, Assistant Professor in Communicative Sciences and Disorders at Michigan State University
Contact Information: Lab phone: 517-884-2259. Dr. Venker’s phone: 517-884-2259.
Lab email: firstname.lastname@example.org.
Dr. Venker’s email: email@example.com.
Lab website: https://lingolab.msu.edu
Cost/Honorarium: Families will receive $20/hour for their participation. We cover mileage for families who live more than 60 miles away from our lab (1026 Red Cedar Rd., East Lansing, MI 48824). We offer a complimentary hotel stay to families who live more than 90 miles away. We will periodically send out newsletters to update families about the study and its findings.
IRB or Ethics Review Approval: Communicative Sciences and Disorders, Michigan State University
Project Name: Family Well-Being and Music Engagement During COVID-19 (Updated 6/30/20)
Participant Criteria: Parents of Children with ASD aged 6 months to 5 years of age
Participants complete a secure online survey about family well-being and parent-child music engagement during COVID-19. Participation will take approximately 15-30 minutes to complete.
Participants receive access to online children’s music activities and can enter a lottery to win (1/30 chance) a $25 Amazon gift card for their participation. Participants who previously completed the survey can complete the survey again during this time of COVID-19.
Access the survey at https://is.gd/MusicChildrenFamilies
PI/Credentials: Miriam Lense, PhD
Contact Information: 615-873-0852; SocialMusicResearch@vumc.org
Cost/Honorarium: Upon completion of the survey, participants can enter a lottery to win (1/30 chance) a $25.00 Amazon Gift Card.
Project Name: Siblings Speak
Project Dates: Ongoing * as soon as MSU allows it, we will start scheduling again! (updated 6/30/20)
Project Description: We are currently looking for adolescents (age 13-17) who have a sibling with Autism (ASD, Asperger Syndrome, and PDD) and their mothers to participate in a research study looking at sibling relationships among adolescents and their siblings with Autism. Individuals with Autism do not need to participate. Participation involves one 2-hour visit to MSU followed by a short set of daily questions online for 16 days and saliva collection at home on 2 days.
PI/Credentials: PI : Amy K. Nuttall, Ph.D., Assistant Professor of Child Development
Department of Human Development and Family Studies
Michigan State University
Contact Information: MSU Family Stress Lab: 517-898-2206
Cost/Honorarium: Participants can earn up to $156 for participating!
Project Name: Evaluation of Melatonin Versus Behavioral Intervention in the Treatment of Sleep Disturbances in Children with Autism Spectrum Disorder
Project Dates: May 2019 to May 2020. Study will be renewed until 15 participants complete the study. *This study is open until May 2021.
The proposed research study aims to evaluate the comparative effectiveness of melatonin and behavioral intervention as treatments for parent-defined, co-occurring sleep disturbances in children diagnosed with Autism Spectrum Disorder (ASD). A two-factor split-plot experimental design will be employed. Participating families will be randomly assigned to one of three groups: bedtime fading with response cost (BFRC), melatonin, and placebo. A modified split-plot analysis of covariance will be applied to evaluate both conventional between-group estimates of treatment effects and time-series single-case estimates of treatment effects that are uncontaminated by within-group variation. Findings will be used to extend both the science and practice of melatonin and BFRC as parent-delivered treatment options for co-occurring sleep disturbances experienced by children diagnosed with ASD.
Risks and Benefits: Please see page 5 of the parent consent form for details. Risks should be no greater than the discomfort already normally exposed to due to the child’s current problem sleep behavior. Benefits include the potential to decrease disruptive sleep behaviors and improve quality of life, as well as potentially lead to a better understanding of autism and sleep problem behaviors and better in-home management of disruptive sleep and related behaviors for other parents and their children.
PI/Credentials: Dr. Sela Sanberg, clinical psychology doctoral candidate in the Psychology Department, and Dr. Wayne Fuqua, professor in the Psychology Department .
Cost/Honorarium: No cost, no honorarium. Research outcomes will be made available to participants at the end of the study.
Project Name: Objective and Subjective Stress Responses of Young Adults with Autism Spectrum Disorder
Project Description: We are looking for college students with autism or ASD and are 18-26 years old. Participants will undergo an online stress stimulation via Zoom. The study lasts 35 minutes but the stimulation lasts only 5 minutes. Participants will wear one of our heart rate devices during the stimulation. Afterwards, participants will be asked to participate in a 30-45 mins interview about their experience and how they handle stress generally. Participants will also be given survey questionnaires about themselves. We will analyze data from the heart rate device and their stress perception.
Risks and Benefits (to families or scientific community): The risks and how we mitigate these risks are as follows: Increased heart rate (we encourage you to do your best during the stimulation), uncomfortable feeling being on Zoom (we encourage you to look into your computer camera and it’s okay if you don’t), germs and viruses (our heart rate devices are sanitized before your use and you are given sanitary wipes to use for your heat rate device), fatigue (you can pause when taking the survey questions and an optional break between stress stimulation and interview), uncomfortable feeling answering some questions (we encourage you to do your best), and confidentiality and privacy (all data collected are stored in MSU’s encrypted OneDrive system and in a password protected laptop). Despite these risks, a benefit from this study includes getting to know yourself, how you process and understand stressful situations, and other personal characteristics you may not yet know of.
Name of PI, researchers, and administrative contacts (with credentials): PI: Dr. Gloria Lee, PhD in Rehabilitation Psychology and Certified Rehabilitation Counselor. Co-PI: Jarhed Peña, MRC, LLPC, CRC, master’s in Rehabilitation Counseling and Certified Rehabilitation Counselor. Study Team Members: Michael Yeomans, MA, CRC, master’s in Rehabilitation Counseling and Certified Rehabilitation, and Caitlin Johnson, undergraduate student at MSU pursuing psychology.
IRB or Ethics Review Approval: STUDY00006138, approved by Michigan State University’s Biomedical and Health Institutional Review Board. Approval Date: 6/29/2021, no expiration date.
Name of research project: The Early Hearing Study at MSU
Simple explanation of project (including age of participants): The Early Hearing Study is a Michigan State University research study about how young babies respond to sound. We are interested in seeing babies who have a sibling diagnosed with a neurodevelopmental condition (such as Autism or Attention Deficit/Hyperactivity disorder).
If you and your baby would like to join us, your participation would involve a one-time visit with a licensed audiologist at the Hearing Health Center (Sparrow Professional Building) in Lansing, MI, when you baby is 3-4 weeks old. Your baby will listen to snap or click sounds, and we will ask you to complete some brief questionnaires.
You and your baby may be eligible to participate if you are: 1)18 years or older, 2) have a child diagnosed with a neurodevelopmental condition (such as Autism Spectrum Disorder), and 3) recently gave birth (1-3 weeks ago) or are expecting soon.
Risks and Benefits (to families or scientific community): The risks to this study are minimal and participants will not directly benefit from participating in this study. However, your participation in this study may help us better understand how young babies use their ears and brains to respond to sounds in their environment.
Name of PI, researchers, and administrative contacts (with credentials): PI Nicole Talge, PhD, Assistant Professor of Epidemiology and Biostatistics; Research Director Melanie Adkins, MPH
IRB or Ethics Review Approval: Approved by Michigan State University Intuitional Review Board, Study ID LEGACY 15-669M
Contact Information (Phone, Email, Website): For questions or more information about The Early Hearing Study at MSU, please email firstname.lastname@example.org, call 517-884-2098, or complete a secure contact form https://msu.co1.qualtrics.com/jfe/form/SV_cOwBQdMTbgsHTCJ
You can also visit the MSU Neurodevelopment and Health Research Group at www.facebook.com/MSUNeurodevHealth/
Name of research project: Character Strengths of Individuals with ASD
Simple explanation of project (including age of participants): We are looking for college students with autism or ASD to complete an online survey. The purpose of this study is to understand how one’s character strengths, daily functioning and social support relate to the perceived personal value and life satisfaction among individuals with ASD. This study is voluntarily basis. The information in the survey will be kept anonymous and data will only be shared as group data. Interested participants can choose to opt out of participation at any time.
Risks and Benefits (to families or scientific community): Regarding risks: There are no foreseeable risks associated with participation in this study. However, participating in this study may have the following issues that may make you feel uncomfortable. Confidentiality. You complete personal information in the demographic form and packets of surveys. It is extremely rare that personal information is breached. We take the following steps to ensure your personal information is not shared without each of your consent. Researchers who are in this study are obligated to follow the Code of Ethics for their practice. All survey data (informed consent, demographic forms, survey measures) contain only a code (not names). Regarding benefits: Your participation in this study may immediately not benefit personally from being in this study. However, the information may allow you to see your personal strength and whether you are satisfied about your life. It will also help us to understand how personal strength can help one to feel satisfied in life. We can help others who feel less aware of their own personal strength to be aware of their strength so that they can stay satisfied in life.
Name of PI, researchers, and administrative contacts (with credentials): PI: Dr. Gloria Lee, PhD in Rehabilitation Psychology and Certified Rehabilitation Counselor. Co-PI: Dr. Susan Smedema, PhD in Rehabilitation Psychology and Certified Rehabilitation Counselor. Study Team Members: Dr. Beatrice Lee, PhD in Rehabilitation Psychology and Certified Rehabilitation Counselor; Judy Huang MS, doctoral student in Rehabilitation Psychology; and Jarhed Peña, MRC, CRC, doctoral candidate in Rehabilitation Counselor Education.
IRB or Ethics Review Approval: STUDY 00006150, approved by Michigan State University’s Biomedical and Health Institutional Review Board. Approval Date: 5/13/2021 and Study #: 2021-0585 by the University of Wisconsin-Madison.
Contact Information (Phone, Email, Website) Dr. Gloria K. Lee (email@example.com) at Michigan State University, Dr. Susan M. Smedema (firstname.lastname@example.org) at University of Wisconsin-Madison, or Dr. Beatrice Lee, email@example.com.
Dates of opportunity? August 2021 through August 2022.
Cost or honorarium? No cost. First 20 participants will earn a $20 Amazon Gift Card upon completion and following the survey instructions on how to receive it.
P.O. Box 27462 Lansing MI 48909